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Showing posts with label ideopathic hypersomnia. Show all posts
Showing posts with label ideopathic hypersomnia. Show all posts

Wednesday, April 17, 2013

NaPoWriMo - Day Seventeen - A Poem of Greeting

For NaPoWriMo today, the prompt is to write a greeting.


Good Morning Moon

My days and nights are confused
once again, I'm afraid
slumber calls far too often, I
wake to sunsets and quiet
instead of the early morning
bustle of life, of people
talking and living and breathing

I realize there's a problem
when the cats sleep less
than I -- when I drift off
to warm bodies snuggled tight
and wake to a cold and lonely
bed, covers pushed away
thrashing limbs on a
posturepedic battlefield.

I've near forgotten the warmth
of sunlight on skin, the
flutter of leaves sparkling
with morning dew.
I've given up the day
a nightwalker, a star that
blazes brightly, but still
for not nearly long enough.

My heart is given to sunshine
and flowers, to birds singing
and dirt under my fingernails
to newly sprouted dahlias
and apple trees, to the sound of
lawnmowers and trimmers
buzzing along merrily
changing daily the landscape of light

My body though denies me much,
all those things I love,
it battles furiously for the night
holding me down - struggling
against all that is light and beauty
forcing another kind of glory,
a shimmering silver perfection....
Good Morning, Moon.







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Monday, November 29, 2010

If I Could Change One Thing.....

Okay so, I asked you guys to ask me anything and I got some good questions, but only from a few of you!

I'm still taking questions though, figured it would be a fun way to help you guys learn more about me, and perhaps entertain as well!  AubrieAnne really kicked it into high gear and gave me a bunch of questions, but the one I'm picking for today is....

(insert drum roll here)

If you could change one thing about your daily routine, what would it be?



Yes, I know I picked the easiest one first, but alas there's a reason.  Kiddo had her first day of work today and it was my stepfather's birthday, so I'm just now getting around to posting here and didn't want to skip the day, so here ya go.

If I could change one thing about my daily routine, I'd definitely add more waking hours.

While most people have sleep disorders that keep them awake, I've got one that makes me wanna sleep.  Pretty much all the time.  I get up and an hour later, I'm ready to take a nap.  When I was tested, I fell into REM sleep within two and a half minutes of laying down.  At night, and at four separate times during the following day.  After seven years of Ritalin and Adderall, they've become non-effective so I'm pretty much on my own until someone comes up with a new drug.

I can tell you that it's difficult to get everything done in eight hours.  It might be easier if they were eight consecutive hours, but I get through my day usually in two to three hour increments of being awake.  On top of that, the issue is compounded because the disease also affects focus and concentration, so I can start out washing the dishes and leave them half done to go rake the yard.  Needless to say it's challenging to keep up with the normal day to day housework that needs to be done, much less anything else.

I make fun of it a lot, laugh about sleeping my life away and I'm generally a pretty positive person, but it's quite frustrating to be honest.  I guess the humor is a coping mechanism because some days it would be pretty easy to just sit down and cry.

So yep, that's it.  I'd add about ten hours less sleep and have the spotless house that I've always wanted, and well, plenty of hours in the day to blog.  We won't even go there.  Writing is my heart, whether it's a book, or a poem or a blog post, so yeah, pretty sure I do a lot more writing and a lot less cleaning than I probably should, but the dustbunnies haven't taken over and demanded a ransom yet, so I think we're okay!

Great questions AubrieAnne, thanks for the reply and I'll catch another one (one that requires a bit more thought) on tomorrows post!

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